We are collecting for Tomika's gene therapy

We collected for Tomika's gene therapy

We managed to contribute half a million Forints for the recovery of Dominik Galó Tamás (Tomika)!

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Tomika suffers from a rare SMA-1 disease, more precisely spinal isomatrophy or spinal muscular atrophy, a rare hereditary disease caused by a defect in the SMN gene, which results in the gradual loss of motor neurons in the spinal cord.

 

Fortunately, the cure already exists, but the price of this medicine called Zolgensma is  760,000,000 Forints. With your help, we have now managed to contribute half a million HUF to Tomika being able to receive the necessary therapy.